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Overview
The Nick Snow Children’s Hospice and Palliative Care Act of 2006/ Assembly Bill 1745 requires the California Department of Health Care Services to submit a waiver to the federal government that allows children with life limiting or life threatening conditions to receive concurrent curative and palliative care.
Currently, full service palliative care i.e. hospice care, is only provided to children when:
- a physician determines that the child has 6 months or less to live; and
- the child forgoes curative treatment.
The Children's Medical Services (CMS) Branch has been designated as the lead agency to write the waiver and will work with the Children’s Hospice and Palliative Care Coalition, the Medi-Cal Waiver Analysis Section, and other stakeholders in developing the waiver. The CMS Branch will also oversee the administration and evaluation of the waiver. The goal of the waiver is to promote the development of comprehensive Pediatric Palliative Care demonstration programs that allow for the provision of expanded hospice type services and curative care concurrently. This program should improve quality of life for children with life limiting or life threatening conditions, and their family members. It is anticipated that cost neutrality will be achieved by reduced hospital stays, medical transports, emergency room visits, and other costs avoided while the child is enrolled in the waiver.
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CONTACT US
The email address for collaboration on this topic is ccsppc@dhcs.ca.gov.
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