Parent Resources
The following list of web sites was compiled for parents of children newly diagnosed with hearing loss. In an effort to help direct parents to useful resources, these web sites have been previewed and summarized. They are listed in alphabetical order. Certainly information regarding deafness is not limited to the web sites listed here; this is simply a starting point for parents to begin researching services and options.
Local Resources
National Organizations
State Organizations
Web Resources
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California Department of Developmental Services, Early Start Program (Not DHCS)
P.O. Box 944202, Sacramento, CA 94244-2020
- The Early Start program publishes a directory of family resource centers, regional centers, local education agencies, and other public agencies who are knowledgeable about early intervention and disabilities, and other related resources for infants and toddlers with special needs and their families.
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California Department of Education: Special Education Local Plan Areas (Not DHCS)
515 L Street, Room 270, Sacramento, CA 95814
Phone: 916-445-4613
Fax: 916-327-3516
- Early intervention services (non-medical) are administered and coordinated by organizations known as special education local plan areas (SELPA). Early intervention services are provided by local education agencies (LEA) such as school districts and county offices of education. SELPAs and LEAs serve infants and toddlers who are not eligible for Regional Center services and who have a visual, hearing or orthopedic impairment or a combination of these.
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House Ear Institute CARE Center (Not DHCS)
2100 West Third Street, Fifth Floor, Los Angeles, CA 90057
Phone: 213-483-4431
TTY: 213-484-2642
E-mail: mwinter@hei.org
- Clinical services for children, ages 0-18 years, including behavioral and physiologic auditory assessments. CAPD evaluations, hearing aids, cochlear implants and speech/language services.
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John Tracy Clinic (Not DHCS)
806 West Adams Boulevard, Los Angeles, CA 90007
Phone: 800-522-4582
TTY: 213-747-2924
Fax: 213-749-1651
Email: ceubanks@jtc.org
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John Tracy Clinic provides, worldwide and without charge, parent-centered services to young children with a hearing loss offering families hope, guidance and encouragement. The Clinic’s free services for families are supported entirely by grants and donations.
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National Organizations
ABLEDATA (Not DHCS)
8401 Colesville Road, Suite 200, Silver Spring, MD 20910
Phone: 800-227-0216 or 301-608-8998
TTY/TDD: 301-608-8912
Fax: 301-608-8958
E-Mail: ABLEDATA@macroint.com or kabelknap@aol.com
Academy of Doctors of Audiology (Not DHCS)
1020 Monarch Street, Suite 300B, Lexington, KY 40513
Phone: (866) 493-5544 (toll free)
Fax: (859) 977-7441
Contact Webpage: http://www.audiologist.org/pages/contact/index.php
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Academy of Doctors of Audiology, formerly the Academy of Dispensing Audiologists - Supports professional dispensing of hearing aids, research, and professional development in aural rehabilitation. Maintains a list of audiologists nationwide as well as a list of frequently asked question and answers.
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Academy of Rehabilitative Audiology (Not DHCS)
P.O. Box 26532, Minneapolis, MN 55426
Phone: 952-920-0196
Fax: 952-920-6098
E-Mail: ara@incnet.com
ADARA (Not DHCS)
P.O. Box 727, Lusby, MD 20657
Phone/TTY/TDD: 410-495-8440
Fax: 410-495-8442
E-Mail: ADARAorgn@aol.com
Alexander Graham Bell Association for the Deaf and Hard of Hearing (Not DHCS)
3417 Volta Place NW, Washington, DC 20007-2778
Phone/TTY/TDD: 202-337-5220
Fax: 202-337-8314
E-Mail: agbell2@aol.com
American Academy of Audiology (Not DHCS)
8300 Greensboro Drive, Suite 750, McLean, VA 22102-3611
Phone/TTY/TDD: 800-222-2336 or (703-790-8466
Fax: 703-790-8631
E-Mail: molek@audiology.org
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Provides professional development, education, research, and promotes increased public awareness of hearing disorders and audiologic services.
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American Academy of Otolaryngology - Head and Neck Surgery, Inc. (Not DHCS)
One Prince Street, Alexandria, VA 22314-3357
Phone: 703-836-4444
TTY/TDD: 703-519-1585
Fax: 703-683-5100
E-Mail: entnews@aol.com
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Provides continuing medical education courses, publications, referrals to physicians, and distributes patient leaflets relating to ear, nose, and throat problems.
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American Hearing Research Foundation (Not DHCS)
55 East Washington Street, Suite 2022, Chicago, IL 60602
Phone: 312-726-9670
Fax: 312-726-9695
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Supports medical research and education in the causes, prevention, and cures of deafness, hearing losses, and balance disorders. Keeps physicians and the public informed on the latest developments in hearing research and education.
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American Laryngological, Rhinological, and Otological Society (Not DHCS)
555 North 30th Street, Omaha, NE 68131
Phone: 402-498-6666
Fax: 402-498-6662
E-Mail: trilog@boystown.org
American Society for Deaf Children (Not DHCS)
P.O. Box 3355, Gettysburg, PA 17325
Phone/TTY/TDD: 717-334-7922
Fax: 717-334-8808
E-Mail: ASDCI@aol.com
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A nonprofit parent-helping parent organization promoting a positive attitude toward sign language and deaf culture. Provides information, encouragement, and support to families with deaf and hard of hearing children.
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American Society for Deaf Children
10801 Rockville Pike, Rockville, MD 20852
Phone: 888-321-ASHA or (800-498-2071
TTY/TDD: 301-571-0457
Fax: 877-541-5035
E-Mail: actioncenter@asha.org
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A professional and scientific organization for speech-language pathologist and audiologists concerned with communication disorders. Provides materials and a toll-free help line for consumers to inquire about speech, language, or hearing problems. Provides referrals to audiologists and speech-language pathologists in the United States.
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Association for Research in Otolaryngology (Not DHCS)
19 Mantua Road, Mount Royal, NJ 08061
Phone: 856-423-0041
Fax: 856-423-3420
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BEGINNINGS (Not DHCS)
P.O. Box 17646, Raleigh, NC 27619
Phone/TTY: 919-850-2746
Fax: 919-571-4846
Better Hearing Institute Helpline (Not DHCS)
515 King Street, Suite 420, Alexandria, VA 22314
Phone: 800-327-9355, 888-HEAR-HELP or 703-684-3391
TTY/TDD: 703-684-3391
Fax: 703-684-6048
E-Mail: mail@betterhearing.org
Boys Town National Research Hospital (Not DHCS)
555 North 30th Street, Omaha, NE 68131
Phone: 402-498-6511
TTY/TDD: 402-498-6543
Fax: 402-498-6638
E-Mail: btnrh@boystown.org
California State University (Not DHCS)
Northridge National Center on Deafness
18111 Nordhoff Street, Northridge, CA 91330-8267
Phone: 818-677-2145
TTY/TDD: (Library) 818-677-2665, (Main Number) 818-677-2611
Fax: 818-677-4899
Captioned Media Program: National Association of the Deaf
1447 East Main Street, Spartanburg, SC 29307
Phone: 800-237-6213
TTY/TDD: 800-237-6819
Fax: 800-538-5636
E-Mail: info@cfv.org
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Provides free loan services of open-captioned media for deaf and hard of hearing persons, teachers, parents, and others. Materials include videos (pre-school through college level-on a variety of topics (classical movies and special interest topics).
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Centers for Disease Control and Prevention (Not DHCS)
Early Hearing Detection and Intervention Program
4770 Buford Highway NE, MS/F-15, Atlanta, GA 30341-3724
Phone: 770-488-7360
Fax: 770-488-7361
E-Mail: ehdi@cdc.gov
Central Institute for the Deaf (Not DHCS)
818 South Euclid Avenue, St. Louis, MO 63110-1549
Phone: 314-977-0000 or 877-444-4574
TTY/TDD: 314-977-0001
Fax: 314-977-0025
Council for Exceptional Children (Not DHCS)
Ballston Plaza Two
1110 North Glebe Road, Suite 300, Arlington, VA 22201-5704
Phone: 888-232-7773
Toll Free: 800-224-6830
TTY/TDD: 866-915-5000
Fax: 703-264-9494
Cued Speech Association (Not DHCS)
Nazareth College
4245 East Avenue, Rochester, NY 14618
Voice/TTY: 716-586-2525
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DB-Link (Not DHCS)
Teaching Research
345 N. Monmouth Ave, Monmouth, OR 97361
Phone: 800-438-9376
TTY: 800-854-7013
Fax: 503-838-8150
Email: dblink@tr.wou.edu
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A federally funded information and referral service that identifies, coordinates, and disseminates free information related to deaf and blind children in the United States. DB-LINK is a collaborative effort between: American Association of the Deaf-Blind, Helen Keller National Center, Perkins School for the Blind and Teaching Research. d
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Easter Seals (Not DHCS)
230 West Monroe Street, Suite 1800, Chicago, IL 60606
Phone: 800-221-6827 or 312-726-6200
TTY/TDD: 312-726-4258
Fax: 312-726-1494
E-Mail: info@easter-seals.org
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Provides early intervention services, support groups, equipment loans, information, and referrals. Contact for local affiliates.
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Families Resource Center on Disabilities (Not DHCS)
20 East Jackson Boulevard, Room 300, Chicago, IL 60604
Phone: 312-939-3513
TTY/TDD: 312-939-3519
Fax: 312-939-7297
E-Mail: frcdptiil@ameritech.net
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Provides assistance, referrals, information, training, and support services.
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Hear Now
4248 Park Glen Road, Minneapolis, MN 55416
Phone: 800-648-Hear
Fax: 952-828-6946
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Committed to making technology accessible to deaf and hard of hearing individuals throughout the United States. Raises funds to provide hearing aids, cochlear implants, and related services to children and adults who need financial assistance.
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Helen Keller Center for Deaf-Blind Youth and Adults (Not DHCS)
111 Middle Neck Road, Sands Point, NY 11050
Phone: 516-944-8900
TTY/TDD: 516-944-8637
Fax: 516-944-7302
E-Mail: hknctrng@aol.com
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Provides services such as information, referrals, advocacy, and technical assistance to professionals, consumers, and families.
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House Ear Institute CARE Center (Not DHCS)
2100 West Third Street, Fifth Floor, Los Angeles, CA 90057
Phone: 213-483-4431
TTY: 213-484-2642
E-mail: mwinter@hei.org
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Clinical services for children, ages 0-18 years, including behavioral and physiologic auditory assessments. CAPD evaluations, hearing aids, cochlear implants and speech/language services.
International Hearing Society (Not DHCS)
16880 Middlebelt Road, Suite 4, Livonia, MI 48154
Phone: 734-522-7200 or Hearing Aid
Helpline: 800-521-5247
Fax: 734-522-0200
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A professional association of Hearing Instrument Specialists who test hearing and select, fit, and dispense hearing instruments. The Society conducts programs of competence qualifications, education and training, and promotes
specialty-level accreditation. The Hearing Aid Helpline provides consumer information and referrals.
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John Tracy Clinic (Not DHCS)
806 West Adams Boulevard, Los Angeles, CA 90007
Phone: 800-522-4582
TTY: 213-747-2924
Fax: 213-749-1651
Email: ceubanks@jtc.org
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John Tracy Clinic provides, worldwide and without charge, parent-centered services to young children with a hearing loss offering families hope, guidance and encouragement. The Clinic’s free services for families are supported entirely by grants and donations.
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Joint Committee on Infant Hearing Screening (Not DHCS)
Indiana University School of Medicine
James Whitcomb Riley Hospital for Children
702 Barnhill Drive, Suite 0860, Indianapolis, IN 46202-5230
Phone: 317-274-8868
Fax: 317-274-6680
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League for the Hard of Hearing (Not DHCS)
50 Broadway, 6th Floor, New York, NY 10004
Phone: 917-305-7700
Phone: 917-305-7700
TTY: 917-305-7999
Fax: 917-305-7888
Email: info@lhh.org
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Offers comprehensive hearing rehabilitation and programs for infants, children, and their families regardless of mode of communication. Promotes hearing conservation and provides public education about hearing.
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Marion Downs National Center for Infant Hearing (Not DHCS)
University of Colorado at Boulder
Department of Speech, Language, and Hearing Science
Campus Box 409, Boulder, CO 80309-0409
Phone/TTY/TDD: 303-492-6283
Fax: 303-492-3274
E-Mail: MDNC@spot.colorado.edu
National Association of the Deaf (NAD) (Not DHCS)
814 Thayer Avenue, Silver Springs, MD 20910-4500
Phone: 301- 587-1788
TTY: 301- 587-1789
Fax: 301- 587-1791
E-Mail: NADinfo@nad.org
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The oldest and one of the largest consumer organizations advocating for equal access by people who are deaf or hard of hearing in the areas of employment, education, telecommunications, and rehabilitation. Also, maintains the NAD Publications Department, deaf awareness programs, a legal defense fund, a public information center, youth programs, and certification programs for interpreters and for sign language instructors.
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National Campaign for Hearing Health
575 Fifth Avenue, 11th Floor, New York, NY 10017
Phone/TTY/TDD: 800-535-3323 or 212-599-0027
Fax: 212-599-0039
E-Mail: drf@drf.org
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Provides public outreach, professional education, and government relations activities to ensure that all Americans, especially children, can benefit from research breakthroughs and enjoy lifelong hearing.
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National Center for Hearing Assessment and Management (NCHAM) (Not DHCS)
Utah State University, 2880 Old Main Hill, Logan, UT 84322
Phone: 435-797-1121
Fax: 435-797-1448
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Develops training materials for hospital universal screening programs, information dissemination, refinement of screening techniques and technology, and data management.
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National Cued Speech Association (Not DHCS)
23970 Hermitage Road, Cleveland, OH 44122-4000
Phone/TTY/TDD: 800-459-3529
Fax: 216-360-0359
E-Mail: cuedspdisc@aol.com
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Provides instruction, counseling and support in the use of Cued Speech for deaf, hard of hearing, cochlear implanted or persons diagnosed with auditory processing disabilities, their families, friends, and professionals who work with them.
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National Institute of Health,
National Institute on Deafness and Other Communication Disorders (NIDCD) (Not DHCS)
31 Center Drive, MSC 2320, Bethesda, MD 20892-2320
Phone: 301-496-7243
TTY/TDD: 301-402-0252
Fax: 301-402-0018
National Institute of Health, National Institute on Deafness and
Other Communication Disorders Information Clearinghouse (Not DHCS)
1 Communication Avenue, Bethesda, MD 20892-3456
Phone: 800-241-1044
TTY/TDD: 800-241-1055
Fax: 301-907-8830
E-Mail: nidcdinfo@nidcd.nih.gov
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National resource center for information about hearing, balance, smell, taste, voice, speech, and language. Collects and disseminates information through an information service and a computerized database (
http://www.nidcd.nih.gov/) (Not DHCS).
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National Institute on Disability and Rehabilitation Research (Not DHCS)
400 Maryland Avenue, SW, Washington, DC 20202-2572
Phone: 202-205-8134
TTY/TDD: 202-205-4475
Fax: 202-205-8515
National Parent Network on Disabilities (Not DHCS)
1130 17th Street NW, Suite 400, Washington, DC 20036
Phone/TTY/TDD: 202-463-2299
Fax: 202-463-9403
Advocates and supports the development and implementation of legislation that improves the lives and protects the rights of children, youth, and adults with disabilities. Provides information, support, and referrals.
National Parent-to-Parent Support and Information System, Inc.
P.O. Box 907, Blue Ridge, GA 30513
Phone: 800-651-1151 or 706-374-3822
Fax: 706-374-3826
E-Mail: nppsis@ellijay.com
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Links families nationally whose children have special health care needs. Provides information, resource, and referrals. Encourages participation in parent programs and disability organizations. Networks parents with local Parent-to-Parent organizations.
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Oberkotter Foundation (Not DHCS)
Phone: 877-ORALDEAF or 877-672-5332
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) (Not DHCS)
1700 North Moore Street, Suite 1540, Arlington, VA 22209-1903
Phone: 703-524-6686
TTY/TDD: 703-524-6639
Fax: 703-524-6630
E-Mail: info@resna.org
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Promotes research, development, education, and dissemination of information. Programs include an annual conference, RESNA publications, publication of the journal Assistive Technology, professional development opportunities, and participation in professional specialty groups.
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Self Help for Hard of Hearing People (Not DHCS)
7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814
Phone: 301-657-2248
TTY/TDD: 301-657-2249
Fax: 301-913-9413
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Educational organization promoting the awareness and information about hearing loss, communication, assistive devices, and communication skills through publications, exhibits, and presentations.
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U.S. Department of Education, ERIC Clearinghouse on Disabilities and Gifted Education (Not DHCS)
1920 Association, Reston, VA 20191-1589
Phone/TTY/TDD: 800-328-0272
E-Mail: ericec@cec.sped.org
U.S. Department of Health and Human Services, Public Health Service, Health Resources and Services Administration, Maternal and Child Health Bureau (Not DHCS)
5600 Fishers Lane, Room 1820, Rockville, MD 20857
Phone: 301-443-0205
Fax: 301-443-1797
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Provides leadership, partnership, and resources to advance the health of mothers, infants, children, and adolescents.
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Zero to Three: National Center for Infants, Toddlers, and Families (Not DHCS)
734 15th Street, N.W., Suite 1000, Washington, DC 20005-1013
Phone: 800-899-4301 or 202-638-1144
Fax: 202-638-0851
E-Mail: Oto3@zerotothree.org
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Promotes the social, emotional, cognitive, and physical development of children zero to three years. Provides information and publishes a bimonthly bulletin.
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State Organizations
California Department of Developmental Services (Not DHCS)
Prevention and Children Services Branch
1600 9th Street, Room 310, Sacramento, CA95814
Phone: 800-515-BABY or 916-654-2773
Fax: 916-645-3255
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Oversees the statewide system of Regional Centers that coordinate, plan and/or provide services and supports for eligible individuals with disabilities. The Branch administers California's early intervention program, known as
Early Start (Not DHCS), for infants and toddlers under three years of age with special developmental needs and their families. The program arranges and/or pays for needed (non-medical-early intervention services and supports (e.g., assistive technology, speech and language therapy, family training and counseling).
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California Department of Education, Deaf and Hard of Hearing Unit (Not DHCS)
515 L Street, Room 270, Sacramento, CA 95814
Phone: 916-327-3850
Fax: 916-445-4550
California Department of Education, Special Education Division (Not DHCS)
515 L Street, Room 270, Sacramento, CA 95814
Phone: 916-445-4613
Fax: 916-327-3516
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Is responsible for developing and coordinating the provision of programs to students with special educations needs. This includes non-medical early intervention services for infants and toddlers who have a visual, hearing, or orthopedic impairment or a combination of these. Services are coordinated and provided locally through Special Education Local Planning Areas and Local Education Agencies.
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Department of Health Care Services, Children's Medical Services (CMS) Branch
P.O. Box 997413, MS 8100, Sacramento, CA 95899-7413
Phone: 916-327-1400
Fax: 916-323-1106
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Plays a key role in overseeing and supporting programs that provide or fund preventative, diagnostic, and treatment services, including well-child assessments, immunizations, specialized health services, therapy, and rehabilitation services. The
Children's Medical Services Branch administers the following Programs:
California Department of Social Services (CDDS), Office of Deaf Access (Not DHCS)
744 P Street, Mail Station 6-91, Sacramento, CA 95814
Phone: 916-653-8320
Voice/TDD: 916-653-7651
Fax: 916-653-4001
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Oversees CDSS service contracts and fiscal accounting of regional service agencies that provide access, assistance and services for persons who are deaf or have any degree of impaired hearing. Regional service agencies provide a variety of direct services which include advocacy, communication assistance, information, referrals, counseling, and community education.
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California Speech-Language-Hearing Association (Not DHCS)
825 University Avenue, Sacramento, CA 95825
Phone: 916-921-1568
Fax: 916-921-0127
E-mail: csha@csha.org
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Provides support to speech-language pathologists through advocacy, advanced knowledge, research, and legislation.
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Cued Speech Association, California Chapters, Central California-Central Vines
3034 East Cornell, Fresno, CA 93704
Phone: 559-222-9139
E-mail: ANN3TT3@aol.com
Cued Speech Association, California Chapters, Northern California-West Coast Programs
348 Cernon Street, Suite D, Vacaville, CA 95633
Phone: 707-448-4060
E-mail: NilCue@aol.com
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Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them.
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IMPACT (Not DHCS)
42101 Camino Santa Barbara, Fremont, CA 94539
Phone: 949-653-5770
TDD: 949-653-5770
E-mail: john_all@msn.com
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Advocacy organization for deaf and hard of hearing children regardless of communication modalities. Promotes a quality education for children, support and early intervention services for families, and information and education for parents.
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Self-Help for the Hard of Hearing People (SHHHP) (Not DHCS)
714 Prospect Boulevard, Pasadena, CA 91103
Phone/Fax: 626-796-0034
E-mail: gracetiessen@earthlink.net
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Promotes awareness and information about hearing loss, communication, assistive devices, and alternative communication skills through publications, exhibits, and presentations.
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Web Resources
American Society for Deaf Children (Not DHCS)
This organization provides support, encouragement, and information to families raising children who are deaf or hard of hearing. Its web site provides highlights of the latest legal developments concerning the ADA (Americans with Disabilities Act), educational issues, etc.
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ASL Access (Not DHCS)
This organization provides ASL (American Sign Language) video resources for public libraries. It also provides video reviews and names of places to purchase ASL videos. Check out this web site to learn more about the videos available.
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BEGINNINGS (Not DHCS)
This is a non-profit organization dedicated to meeting the needs of families with children who are deaf or hard of hearing. The web site hosts a broad range of services and resources.
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The Care Notebook (Non DHCS
The Care Notebook is an outstanding organizer for families who have children with special needs. Families use the notebook to keep track of important information about their child’s health and care. The best part is the whole thing can be downloaded for free!
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Center For Early Intervention on Deafness (Not DHCS)
Center for Early Intervention on Deafness (CEID) is a California nonprofit organization serving families who reside throughout the San Francisco Bay Area.
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Hands and Voices (Not DHCS)
Hands and Voices is a parent driven, non-profit organization dedicated to providing unbiased support to families with children who are deaf or hard of hearing. We provide support activities and information concerning deaf and hard of hearing issues to parents and professionals that may include outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking, and a newsletter. We strive to connect families with resources and information to make informed decisions around the issues of deafness or hearing loss.
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The Hearing Exchange (Not DHCS)
An online community for the exchange of ideas and information on hearing loss and related issues.
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John Tracy Clinic (Not DHCS)
John Tracy Clinic is a private, non-profit deaf education center founded by Louise Treadwell Tracy in 1942. Its mission is to offer hope, guidance and encouragement to families of infants and preschool children with hearing losses by providing free, parent-centered services worldwide. The Clinic has 60 years of expertise in the spoken language option.
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Laurent Clerc National Deaf Education Center (Not DHCS)
This site lists helpful books and resources for parents of children who are deaf or hard of hearing.
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The Listen-Up Web (Not DHCS)
This is a very large web site dedicated to gathering information and developing products geared to the special needs of deaf/hard of hearing children and their families.
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My Baby's Hearing (Not DHCS)
This is a web sited developed by Boys Town National Research Hospital with support from National Institute on Deafness and Other Communications Disorders. It provides parents with information regarding hearing screening and walks them through the process if their child has a diagnosed hearing loss.
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National Institute on Deafness and Other Communication Disorders (Not DHCS)
This is an excellent site with valuable information for parents. They include an unbiased look at communication options for children who are deaf or hard of hearing.
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NorCal Center on Deafness (Not DHCS)
This is a wide-ranging agency that provides services for the deaf and hard of hearing of all ages across Northern California.
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S.E.E. Center (Not DHCS)
The SEE (Signing Exact English) Center for the Advancement of Deaf Children was established in 1984 as a nonprofit organization to work with parents and educators of hearing impaired children. Peruse this web site for more information.
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Sound and Fury (Not DHCS)
This web site provides a thorough list of resources on the topics of cochlear implants, deaf children, sign language, books, and more. Definitely check it out!
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Special Needs Project (Not DHCS)
This web site showcases a one-of-a-kind bookstore specializing in disabilities. Special Needs Project has thousands of titles in stock, including many of those "hard to get" books.
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