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Parent Resources

The following list of websites was compiled for parents of children newly diagnosed with hearing loss. In an effort to help direct parents to useful resources, these websites have been previewed and summarized. They are listed in alphabetical order. Certainly information regarding deafness is not limited to the websites listed here; this is simply a starting point for parents to begin researching services and options.

Local Resources

National Organizations      

State Organizations

Web Resources

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Local Resources

  • California Department of Developmental Services, Early Start Program (Not DHCS)
    P.O. Box 944202, Sacramento, CA  94244-2020

    The Early Start program publishes a directory of family resource centers, regional centers, local education agencies, and other public agencies who are knowledgeable about early intervention and disabilities, and other related resources for infants and toddlers with special needs and their families.
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  • California Department of Education: Special Education Local Plan Areas (Not DHCS)
    515 L Street, Room 270, Sacramento, CA  95814
    Phone: 916-445-4613
    Fax: 916-327-3516

    Early intervention services (non-medical) are administered and coordinated by organizations known as special education local plan areas (SELPA).  Early intervention services are provided by local education agencies (LEA) such as school districts and county offices of education.  SELPAs and LEAs serve infants and toddlers who are not eligible for Regional Center services and who have a visual, hearing or orthopedic impairment or a combination of these.
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  • House Ear Institute CARE Center (Not DHCS)
    2100 West Third Street, Fifth Floor, Los Angeles, CA 90057
    Phone: 213-483-4431
    TTY: 213-484-2642
    E-mail: mwinter@hei.org

    Clinical services for children, ages 0-18 years, including behavioral and physiologic auditory assessments. CAPD evaluations, hearing aids, cochlear implants and speech/language services.
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  • John Tracy Clinic (Not DHCS)
    806 West Adams Boulevard, Los Angeles, CA 90007
    Phone: 800-522-4582
    TTY: 213-747-2924
    Fax: 213-749-1651
    Email: ceubanks@jtc.org

    John Tracy Clinic provides, worldwide and without charge, parent-centered services to young children with a hearing loss offering families hope, guidance and encouragement. The Clinic’s free services for families are supported entirely by grants and donations.

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National Organizations

  • ABLEDATA (Not DHCS)
    8401 Colesville Road, Suite 200, Silver Spring, MD 20910
    Phone: 800-227-0216 or 301-608-8998
    TTY/TDD: 301-608-8912
    Fax: 301-608-8958
    E-Mail: ABLEDATA@macroint.com or kabelknap@aol.com

    An information and referral project that maintains a database of 25,000-plus assistive technology products. The project also provides fact sheets on devices and other aspects of assistive technology.
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  • Academy of Doctors of Audiology (Not DHCS)
    1020 Monarch Street, Suite 300B, Lexington, KY 40513
    Phone: (866) 493-5544 (Toll Free)
    Fax: (859) 977-7441

    Contact Webpage: http://www.audiologist.org/pages/contact/index.php
  • Academy of Doctors of Audiology, formerly the Academy of Dispensing Audiologists - Supports professional dispensing of hearing aids, research, and professional development in aural rehabilitation. Maintains a list of audiologists nationwide as well as a list of frequently asked question and answers.
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  • Academy of Rehabilitative Audiology (Not DHCS)
    P.O. Box 26532, Minneapolis, MN  55426
    Phone: 952-920-0196
    Fax: 952-920-6098
    E-Mail: ara@incnet.com

    Promotes
    excellence in hearing care through the provision of comprehensive rehabilitative and habilitative services.
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  • ADARA (Not DHCS)
    P.O. Box 727, Lusby, MD 20657
    Phone/TTY/TDD: 410-495-8440
    Fax: 410-495-8442
    E-Mail: ADARAorgn@aol.com

    A nonprofit, incorporated association of professionals and interested persons involved in promoting and participating in quality human service delivery to deaf and hard of hearing individuals.
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  • Alexander Graham Bell Association for the Deaf and Hard of Hearing (Not DHCS)
    3417 Volta Place NW, Washington, DC 20007-2778
    Phone/TTY/TDD: 202-337-5220
    Fax: 202-337-8314
    E-Mail: agbell2@aol.com

    Gathers and disseminates information on hearing loss in children and adults. Promotes early detection of hearing loss in infants. Advocates for the rights of children and adults who are deaf or hard of hearing.
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  • American Academy of Audiology (Not DHCS)
    8300 Greensboro Drive, Suite 750, McLean, VA  22102-3611
    Phone/TTY/TDD: 800-222-2336 or (703-790-8466
    Fax: 703-790-8631
    E-Mail: molek@audiology.org

    Provides professional development, education, research, and promotes increased public awareness of hearing disorders and audiologic services.
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  • American Academy of Otolaryngology - Head and Neck Surgery, Inc. (Not DHCS)
    One Prince Street, Alexandria, VA  22314-3357
    Phone: 703-836-4444
    TTY/TDD: 703-519-1585
    Fax: 703-683-5100
    E-Mail: entnews@aol.com

    Provides continuing medical education courses, publications, referrals to physicians, and distributes patient leaflets relating to ear, nose, and throat problems.

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  • American Hearing Research Foundation (Not DHCS)
    55 East Washington Street, Suite 2022, Chicago, IL 60602
    Phone: 312-726-9670
    Fax: 312-726-9695

    Supports medical research and education in the causes, prevention, and cures of deafness, hearing losses, and balance disorders. Keeps physicians and the public informed on the latest developments in hearing research and education.
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  • American Laryngological, Rhinological, and Otological Society (Not DHCS)
    555 North 30th Street, Omaha, NE 68131
    Phone: 402-498-6666
    Fax: 402-498-6662
    E-Mail: trilog@boystown.org

    Provides continuing educational opportunities for its members through conferences and regional meetings.
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  • American Society for Deaf Children (Not DHCS)
    P.O. Box 3355, Gettysburg, PA 17325
    Phone/TTY/TDD: 717-334-7922
    Fax: 717-334-8808
    E-Mail: ASDCI@aol.com

    A nonprofit parent-helping parent organization promoting a positive attitude toward sign language and deaf culture. Provides information, encouragement, and support to families with deaf and hard of hearing children.
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  • American Society for Deaf Children (Not DHCS)
    10801 Rockville Pike, Rockville, MD  20852
    Phone: 888-321-ASHA or (800-498-2071
    TTY/TDD: 301-571-0457
    Fax: 877-541-5035
    E-Mail: actioncenter@asha.org

    A professional and scientific organization for speech-language pathologist and audiologists concerned with communication disorders. Provides materials and a toll-free help line for consumers to inquire about speech, language, or hearing problems. Provides referrals to audiologists and speech-language pathologists in the United States.
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  • Association for Research in Otolaryngology (Not DHCS)
    19 Mantua Road, Mount Royal, NJ  08061
    Phone: 856-423-0041
    Fax: 856-423-3420

    Encourages and promotes research, publishes the Journal of the Association for Research in Otolaryngology, and maintains ARO abstracts on their websites.

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  • BEGINNINGS (Not DHCS)
    P.O. Box 17646, Raleigh, NC 27619
    Phone/TTY: 919-850-2746
    Fax: 919-571-4846

    This is a non-profit organization dedicated to meeting the needs of families with children who are deaf or hard of hearing. The website hosts a broad range of services and resources. Produces materials and videos oriented towards helping families make choices about communication methods.
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  • Better Hearing Institute Helpline (Not DHCS)
    515 King Street, Suite 420, Alexandria, VA  22314
    Phone: 800-327-9355, 888-HEAR-HELP or 703-684-3391
    TTY/TDD: 703-684-3391
    Fax: 703-684-6048
    E-Mail: mail@betterhearing.org

    Nonprofit educational organization that implements national public information programs on hearing loss and the available types of assistance.
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  • Boys Town National Research Hospital (Not DHCS)
    555 North 30th Street, Omaha, NE  68131
    Phone: 402-498-6511
    TTY/TDD: 402-498-6543
    Fax: 402-498-6638
    E-Mail: btnrh@boystown.org

    Mission is to help and heal children and operate a leading clinical and research center for childhood hearing loss and related disorders.
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  • California State University (Not DHCS)
    Northridge National Center on Deafness
    18111 Nordhoff Street, Northridge, CA  91330-8267
    Phone: 818-677-2145
    TTY/TDD: (Library) 818-677-2665, (Main Number) 818-677-2611 
    Fax: 818-677-4899

    Provides information and referrals on a wide variety of topics related to deafness.
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  • Captioned Media Program: National Association of the Deaf (Not DHCS)
    1447 East Main Street, Spartanburg, SC 29307
    Phone: 800-237-6213
    TTY/TDD: 800-237-6819
    Fax: 800-538-5636
    E-Mail: info@cfv.org

    Provides free loan services of open-captioned media for deaf and hard of hearing persons, teachers, parents, and others. Materials include videos (pre-school through college level-on a variety of topics (classical movies and special interest topics).

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  • Centers for Disease Control and Prevention (Not DHCS)
    Early Hearing Detection and Intervention Program
    4770 Buford Highway NE, MS/F-15, Atlanta, GA  30341-3724
    Phone: 770-488-7360
    Fax: 770-488-7361
    E-Mail: ehdi@cdc.gov

    Provides resources and information related to the detection and management of hearing impairment at an early age. Families and professionals are welcome to participate in bi-monthly teleconferences.
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  • Central Institute for the Deaf (Not DHCS)
    818 South Euclid Avenue, St. Louis, MO  63110-1549
    Phone: 314-977-0000 or 877-444-4574
    TTY/TDD: 314-977-0001
    Fax: 314-977-0025

    A network of resources addressing the progressive treatment of adult and childhood deafness.
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  • Council for Exceptional Children (Not DHCS)
    Ballston Plaza Two
    1110 North Glebe Road, Suite 300, Arlington, VA  22201-5704
    Phone: 888-232-7773
    TTY/TDD: 866-915-5000
    Fax: 703-264-9494

    Toll Free: 800-224-6830

    Professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and the gifted.
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  • Cued Speech Association (Not DHCS)
    Nazareth College
    4245 East Avenue, Rochester, NY 14618
    Voice/TTY: 716-586-2525

    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them.

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  • DB-Link (Not DHCS)
    Teaching Research
    345 N. Monmouth Ave, Monmouth, OR  97361
    Phone: 800-438-9376 
    TTY: 800-854-7013
    Fax: 503-838-8150
    Email:  dblink@tr.wou.edu

    A federally funded information and referral service that identifies, coordinates, and disseminates free information related to deaf and blind children in the United States. DB-LINK is a collaborative effort between: American Association of the Deaf-Blind, Helen Keller National Center, Perkins School for the Blind and Teaching Research.

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  • Easter Seals (Not DHCS)
    230 West Monroe Street, Suite 1800, Chicago, IL  60606
    Phone: 800-221-6827 or 312-726-6200
    TTY/TDD: 312-726-4258
    Fax: 312-726-1494
    E-Mail: info@easter-seals.org

    Provides early intervention services, support groups, equipment loans, information, and referrals. Contact for local affiliates.
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  • Families Resource Center on Disabilities (Not DHCS)
    20 East Jackson Boulevard, Room 300, Chicago, IL  60604
    Phone: 312-939-3513
    TTY/TDD: 312-939-3519
    Fax: 312-939-7297
    E-Mail: frcdptiil@ameritech.net

    Provides assistance, referrals, information, training, and support services.
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  • Hear Now (Not DHCS)
    4248 Park Glen Road, Minneapolis, MN  55416
    Phone: 800-648-Hear
    Fax: 952-828-6946

    Committed to making technology accessible to deaf and hard of hearing individuals throughout the United States. Raises funds to provide hearing aids, cochlear implants, and related services to children and adults who need financial assistance.
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  • Helen Keller Center for Deaf-Blind Youth and Adults (Not DHCS)
    111 Middle Neck Road, Sands Point, NY 11050
    Phone: 516-944-8900
    TTY/TDD: 516-944-8637
    Fax: 516-944-7302
    E-Mail: hknctrng@aol.com

    Provides services such as information, referrals, advocacy, and technical assistance to professionals, consumers, and families.

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  • House Ear Institute CARE Center (Not DHCS)
    2100 West Third Street, Fifth Floor, Los Angeles, CA  90057
    Phone: 213-483-4431
    TTY: 213-484-2642
    E-mail: mwinter@hei.org

    Clinical services for children, ages 0-18 years, including behavioral and physiologic auditory assessments. CAPD evaluations, hearing aids, cochlear implants and speech/language services.

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  • International Hearing Society (Not DHCS)
    16880 Middlebelt Road, Suite 4, Livonia, MI  48154
    Phone: 734-522-7200 or Hearing Aid
    Helpline: 800-521-5247
    Fax: 734-522-0200

    A professional association of Hearing Instrument Specialists who test hearing and select, fit, and dispense hearing instruments. The Society conducts programs of competence qualifications, education and training, and promotes
    specialty-level accreditation. The Hearing Aid Helpline provides consumer information and referrals.

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  • John Tracy Clinic (Not DHCS)
    806 West Adams Boulevard, Los Angeles, CA  90007
    Phone: 800-522-4582
    TTY: 213-747-2924
    Fax: 213-749-1651
    Email: ceubanks@jtc.org

    John Tracy Clinic provides, worldwide and without charge, parent-centered services to young children with a hearing loss offering families hope, guidance and encouragement. The Clinic’s free services for families are supported entirely by grants and donations.
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  • Joint Committee on Infant Hearing Screening (Not DHCS)
    Indiana University School of Medicine
    James Whitcomb Riley Hospital for Children
    702 Barnhill Drive, Suite 0860, Indianapolis, IN  46202-5230
    Phone: 317-274-8868
    Fax: 317-274-6680

    Addresses issues important to the early identification, evaluation, and follow-up care of infants and young children with hearing loss.

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  • League for the Hard of Hearing (Not DHCS)
    50 Broadway, 6th Floor, New York, NY 10004
    Phone: 917-305-7700
    Phone: 917-305-7700
    TTY: 917-305-7999
    Fax: 917-305-7888
    Email: info@lhh.org

    Offers comprehensive hearing rehabilitation and programs for infants, children, and their families regardless of mode of communication. Promotes hearing conservation and provides public education about hearing.
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  • Marion Downs National Center for Infant Hearing (Not DHCS)
    University of Colorado at Boulder
    Department of Speech, Language, and Hearing Science
    Campus Box 409, Boulder, CO  80309-0409
    Phone/TTY/TDD: 303-492-6283
    Fax: 303-492-3274
    E-Mail: MDNC@spot.colorado.edu

    Provides technical assistance on newborn hearing screening and assessment and early intervention systems.
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  • National Association of the Deaf (NAD) (Not DHCS)
    814 Thayer Avenue, Silver Springs, MD 20910-4500
    Phone: 301- 587-1788
    TTY: 301- 587-1789
    Fax: 301- 587-1791
    E-Mail: NADinfo@nad.org

    The oldest and one of the largest consumer organizations advocating for equal access by people who are deaf or hard of hearing in the areas of employment, education, telecommunications, and rehabilitation. Also, maintains the NAD Publications Department, deaf awareness programs, a legal defense fund, a public information center, youth programs, and certification programs for interpreters and for sign language instructors.
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  • National Campaign for Hearing Health (Not DHCS)
    575 Fifth Avenue, 11th Floor, New York, NY 10017
    Phone/TTY/TDD: 800-535-3323 or 212-599-0027
    Fax: 212-599-0039
    E-Mail: drf@drf.org

    Provides public outreach, professional education, and government relations activities to ensure that all Americans, especially children, can benefit from research breakthroughs and enjoy lifelong hearing.
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  • National Center for Hearing Assessment and Management (NCHAM) (Not DHCS)
    Utah State University, 2880 Old Main Hill, Logan, UT 84322
    Phone: 435-797-1121
    Fax: 435-797-1448

    Develops training materials for hospital universal screening programs, information dissemination, refinement of screening techniques and technology, and data management.
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  • National Cued Speech Association (Not DHCS)
    23970 Hermitage Road, Cleveland, OH 44122-4000
    Phone/TTY/TDD: 800-459-3529
    Fax: 216-360-0359
    E-Mail: cuedspdisc@aol.com

    Provides instruction, counseling and support in the use of Cued Speech for deaf, hard of hearing, cochlear implanted or persons diagnosed with auditory processing disabilities, their families, friends, and professionals who work with them.
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  • National Institute of Health,
    National Institute on Deafness and Other Communication Disorders (NIDCD)
     (Not DHCS)
    31 Center Drive, MSC 2320, Bethesda, MD 20892-2320
    Phone: 301-496-7243
    TTY/TDD: 301-402-0252
    Fax: 301-402-0018

    Provides information and disseminates materials to educate the public and health professionals about research areas in human communication.
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  • National Institute of Health, National Institute on Deafness and
    Other Communication Disorders Information Clearinghouse
     (Not DHCS)
    1 Communication Avenue, Bethesda, MD 20892-3456
    Phone: 800-241-1044
    TTY/TDD: 800-241-1055
    Fax: 301-907-8830
    E-Mail: nidcdinfo@nidcd.nih.gov

    National resource center for information about hearing, balance, smell, taste, voice, speech, and language. Collects and disseminates information through an information service and a computerized database (http://www.nidcd.nih.gov/) (Not DHCS).
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  • National Institute on Disability and Rehabilitation Research (Not DHCS)
    400 Maryland Avenue, SW, Washington, DC 20202-2572
    Phone: 202-205-8134
    TTY/TDD: 202-205-4475
    Fax: 202-205-8515

    Provides support for disability rehabilitation research and disseminates information about rehabilitation methods and technology for individuals with disabilities.
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  • National Parent Network on Disabilities (Not DHCS)
    1130 17th Street NW, Suite 400, Washington, DC 20036
    Phone/TTY/TDD: 202-463-2299
    Fax: 202-463-9403

    Advocates and supports the development and implementation of legislation that improves the lives and protects the rights of children, youth, and adults with disabilities. Provides information, support, and referrals.
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  • National Parent-to-Parent Support and Information System, Inc. (Not DHCS)
    P.O. Box 907, Blue Ridge, GA 30513
    Phone: 800-651-1151 or 706-374-3822
    Fax: 706-374-3826
    E-Mail: nppsis@ellijay.com

    Links families nationally whose children have special health care needs. Provides information, resource, and referrals. Encourages participation in parent programs and disability organizations. Networks parents with local Parent-to-Parent organizations.
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  • Oberkotter Foundation (Not DHCS)
    Phone: 877-ORALDEAF or 877-672-5332

    Provides free videos, and other educational materials and information regarding Oral-Deaf education for children.
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  • Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) (Not DHCS)
    1700 North Moore Street, Suite 1540, Arlington, VA  22209-1903
    Phone: 703-524-6686
    TTY/TDD: 703-524-6639
    Fax: 703-524-6630
    E-Mail: info@resna.org

    Promotes research, development, education, and dissemination of information. Programs include an annual conference, RESNA publications, publication of the journal Assistive Technology, professional development opportunities, and participation in professional specialty groups.

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State Organizations 

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    California School for the Deaf, Riverside (CSDR) (Not DHCS)
    3044 Horace Street, Riverside, CA 92506
    Phone: 951-782-6500

    The CSDR offers comprehensive educational and extra-curricular programs that prepare students to achieve their full academic, social, and career potential.  
     

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  • California Speech-Language-Hearing Association (Not DHCS)
    825 University Avenue, Sacramento, CA 95825
    Phone: 916-921-1568
    Fax: 916-921-0127
    E-mail: csha@csha.org

    Provides support to speech-language pathologists through advocacy, advanced knowledge, research, and legislation.

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  • Cued Speech Association, California Chapters, Central California-Central Vines
    3034 East Cornell, Fresno, CA 93704
    Phone: 559-222-9139
    E-mail: ANN3TT3@aol.com

    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them.
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  • Cued Speech Association, California Chapters, Northern California-West Coast Programs (Not DHCS)
    348 Cernon Street, Suite D, Vacaville, CA 95633
    Phone: 707-448-4060
    E-mail: NilCue@aol.com

    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them.

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  • IMPACT (Not DHCS)
    42101 Camino Santa Barbara, Fremont, CA 94539
    Phone: 949-653-5770
    TDD: 949-653-5770
    E-mail: john_all@msn.com

    Advocacy organization for deaf and hard of hearing children regardless of communication modalities. Promotes a quality education for children, support and early intervention services for families, and information and education for parents.
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  • Self-Help for the hard of hearing People (SHHHP) (Not DHCS)
    714 Prospect Boulevard, Pasadena, CA 91103
    Phone/Fax: 626-796-0034
    E-mail: gracetiessen@earthlink.net

    Promotes awareness and information about hearing loss, communication, assistive devices, and alternative communication skills through publications, exhibits, and presentations.
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Web Resources

  • American Society for Deaf Children (Not DHCS)
    This organization provides support, encouragement, and information to families raising children who are deaf or hard of hearing. Its website provides highlights of the latest legal developments concerning the ADA (Americans with Disabilities Act), educational issues, etc.

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  • ASL Access (Not DHCS)
    This organization provides ASL (American Sign Language) video resources for public libraries. It also provides video reviews and names of places to purchase ASL videos. Check out this website to learn more about the videos available.

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  • BEGINNINGS (Not DHCS)
    This is a non-profit organization dedicated to meeting the needs of families with children who are deaf or hard of hearing. The website hosts a broad range of services and resources.

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  • The Care Notebook (Non DHCS
    The Care Notebook is an outstanding organizer for families who have children with special needs. Families use the notebook to keep track of important information about their child’s health and care. The best part is the whole thing can be downloaded for free!

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  • Center For Early Intervention on Deafness (Not DHCS)
    Center for Early Intervention on Deafness (CEID) is a California nonprofit organization serving families who reside throughout the San Francisco Bay Area.

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  • Hands and Voices (Not DHCS)
    Hands and Voices is a parent driven, non-profit organization dedicated to providing unbiased support to families with children who are deaf or hard of hearing. We provide support activities and information concerning deaf and hard of hearing issues to parents and professionals that may include outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking, and a newsletter. We strive to connect families with resources and information to make informed decisions around the issues of deafness or hearing loss.

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  • The Hearing Exchange (Not DHCS)
    An online community for the exchange of ideas and information on hearing loss and related issues.

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  • John Tracy Clinic (Not DHCS)
    John Tracy Clinic is a private, non-profit deaf education center founded by Louise Treadwell Tracy in 1942. Its mission is to offer hope, guidance and encouragement to families of infants and preschool children with hearing losses by providing free, parent-centered services worldwide. The Clinic has 60 years of expertise in the spoken language option.

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  • The Listen-Up Web (Not DHCS)
    This is a very large website dedicated to gathering information and developing products geared to the special needs of deaf/hard of hearing children and their families.

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  • My Baby's Hearing (Not DHCS)
    This is a website developed by Boys Town National Research Hospital with support from National Institute on Deafness and Other Communications Disorders. It provides parents with information regarding hearing screening and walks them through the process if their child has a diagnosed hearing loss.

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  • NorCal Center on Deafness (Not DHCS)
    This is a wide-ranging agency that provides services for the deaf and hard of hearing of all ages across Northern California.

 

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  • S.E.E. Center (Not DHCS)
    The SEE (Signing Exact English) Center for the Advancement of Deaf Children was established in 1984 as a nonprofit organization to work with parents and educators of hearing impaired children. Peruse this website for more information.

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  • Sound and Fury (Not DHCS)
    This website provides a thorough list of resources on the topics of cochlear implants, deaf children, sign language, books, and more. Definitely check it out!

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  • Special Needs Project (Not DHCS)
    This website showcases a one-of-a-kind bookstore specializing in disabilities. Special Needs Project has thousands of titles in stock, including many of those "hard to get" books.

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Last modified on: 8/17/2011 9:56 AM