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External Resources
External Resources
Children's Hospice and Palliative Care Coalition
End of Life Nursing Education Consortium
Centers for Medicare & Medicaid Services,
Medicaid
State Waiver Demonstration Projects - General Information
Children’s Hospice International
Sponsors international conferences, publications, ad the CHI Program for All-Inclusive Care for Children and their Families (CHI PACC®)
The Initiative for Pediatric Palliative Care (IPPC)
The IPPC curriculum is a powerful tool to assist pediatric health care professionals in their mission of providing the highest quality of care to children and their families.
Association for Children with Life Threatening or terminal conditions and their families (ACT)
The Association for Children's Palliative Care is a UK-registered charity which is striving to achieve the best quality of life and care for all children and young people with life-threatening or life-limiting conditions and their families. (great references and palliative care models)
The National Hospice and Palliative Care Organization (NHPCO)
NHPCO’s Mission is to lead and mobilize social change for improved care at the end of life.
Children’s Project on Palliative/Hospice Services (ChiPPS)
ChiPPS sponsors an electronic newsletter, other publications, educational conferences, and additional initiatives.
National Consensus Project for Quality Palliative Care 2004
Clinical Practice Guidelines for Quality Palliative Care National Consensus Project These Guidelines were developed through consensus of care organizations and describe the core precepts and structures of clinical palliative care programs.
POLST California
POLST (Physician Orders for Life-Sustaining Treatment) is a form that states what kind of medical treatment patients want toward the end of their lives. This page offers videos describing use of POLST as well as POLST in multiple languages.
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