Data Collection

• Race, Ethnicity, Language Data Resource List
• California Pan-Ethnic Health Network (CPEHN) Combined Recommendations on Data Collection for Race, Ethnicity, Primary Language, Disability Status, Gender and Sexual Orientation
• CPEHN Fact Sheet – Eliminating Health Disparities: Standardizing data collection on race, ethnicity, and primary language
• Disability Rights Education and Defense Fund (DREDF) Comments to Proposed Data Collection Standards for Race, Ethnicity, Primary Language, Sex, and Disability Status Required by Section 4302 of the ACA
• The Leadership Conference on Civil and Human Rights (LCCHR) Memorandum: Recommendations Related to Data Collection Requirements in Section 4302 of the ACA

Confidentiality Protections

• Consumers Union and Center for Democracy and Technology (CDT): Preserving Integrity in CalHEERS Policy Recommendations
• Consumers Union and CDT: Preserving Integrity in CalHEERS Policy Recommendations Matrix
• Consumers Union CDT: Security Memorandum

Presentations

• Ignatius Bau: AB 1296 Demographic Data Collection
• DHCS HIPAA Overview Presentation
• HBEX Presentation on CalHEERS IT Security Requirements