首页服务加州新生儿听力筛查计划家长资源​​ 

家长资源​​ 

The Newborn Hearing Screening Program (NHSP) identified some helpful materials for the parents of children newly diagnosed with hearing loss. The information contained in the links below is meant to serve as a starting point and offer a baseline and/or foundation by which you can more successfully seek answers appropriate for you and your child’s unique situation. These resources may be helpful when researching services and options for your child. Certainly information regarding deafness is not limited to the materials provided here. We encourage you to contact professionals and organizations that you are comfortable with and who you trust to help you make the choices affecting your child’s future. An excellent place to start looking for answers to your questions is your local Hearing Coordination Center (HCC) or by calling the NHSP toll-free number at 1-877-388-5301.​​ 

有用的文章和可打印的指南​​ 

州资源​​ 

  • 加州发展服务部，早期启动计划​​  
    P.O. Box 944202, Sacramento, CA  94244-2020
    800-515-BABY (800-515-2229)
    E-Mail: earlystart@dds.ca.gov
    The Early Start program publishes a directory of family resource centers, regional centers, local education agencies, and other public agencies who are knowledgeable about early intervention and disabilities, and other related resources for infants and toddlers with special needs and their families.​​ 
  • 加州教育部聋人教育​​ 
    E-mail: nhlibokamann@cde.ca.gov
    Provides resources to parents including but not limited to: milestone guides, assessment tools, sign language videos, telecommunication services and equipment access, as well as legal explanations of the resources young children who are deaf or hard of hearing have a right to access in school.​​ 
  • 加州教育部特殊教育司​​ 
    电话：(916) 445-4613
    电子邮件： specedinfoshare@cde.ca.gov
    负责制定和协调为有特殊教育需要的学生提供的项目。这包括为患有视力、听力或骨科障碍或这些障碍组合的婴幼儿提供非医疗早期干预服务。服务由特殊教育地方规划区和地方教育机构在当地协调和提供。​​ 
  • 加州教育部：特殊教育地方计划领域​​  
    515 L Street, Room 270, Sacramento, CA 95814
    电话：(916) 445-4613
    电子邮件： specedinfoshare@cde.ca.gov
    早期干预服务（非医疗）由被称为特殊教育地方计划区域 (SELPA) 的组织管理和协调。早期干预服务由地方教育机构（LEA）提供，例如学区和县教育办公室。SELPA 和 LEA 为不符合区域中心服务资格且患有视力、听力或骨科障碍或这些障碍同时存在的婴幼儿提供服务。​​ 
  • 加州社会服务部 (CDSS)，聋人无障碍计划​​ 
    Phone: (916) 653-8320
    Videophone: (916) 330-3242
    E-Mail: Deaf.Access@dss.ca.gov
    Hosts directories for Deaf Access Programs and Sign Language Interpreter services. The Deaf Access Programs in California provide communication services, advocacy services, job placement, referrals, counseling, independent living skills instruction, and community education.​​  
  • 加州弗里蒙特聋哑学校​​ 
    39350 Gallaudet Drive, Fremont, CA  94538
    Phone: (510) 248-4204 
    Videophone: (510) 248-4204 
    Fax:  (510) 794-2409
    Educational resources for families with deaf children and the community in Northern California. The school offers free, weekly online American Sign Language classes for families as well as tutoring.​​  
  • 加州河滨市聋哑学校​​ 
    2044 Horace Street, Riverside, CA 92506
    Phone: (951) 824-8114 
    E-Mail: info@csdr-cde.ca.gov
    Offers comprehensive educational and extra-curricular programs that prepare students to achieve their full academic, social, and career potential. The school serves deaf and hard-of-hearing students between the ages of 3 and 21 who reside in Southern California.​​   
  • 手与声音​​  
    Hands and Voices 是一个由家长推动的非营利组织，致力于为有聋哑或听力障碍儿童的家庭提供公正的支持。他们向家长和专业人士提供有关聋人和听力障碍问题的支持活动和信息，其中可能包括外展活动、教育研讨会、宣传、游说活动、家长对家长交流和时事通讯。​​  
  • 儿童助听器覆盖计划​​ 
    California Department of Health Care Services
    Phone (Multilingual, TTY/TTD): (833) 956-2878
    E-Mail: HACCP@maximus.com
    The Hearing Aid Coverage for Children Program (HACCP) offers hearing aid coverage to eligible children and youth, ages 0-20, including supplemental coverage for applicants whose other health coverage has a limit of $1,500 or less for hearing aids. The webpage offers information on covered benefits, eligibility, and more.​​  
  • 约翰·特雷西诊所​​  
    2160 West Adams Blvd., Los Angeles CA, 90018
    Phone: (213) 748-5481 
    TTY: (213) 747-2924
    Fax: (213) 749-1651
    E-Mail: web@jtc.org
    John Tracy Clinic provides free education, guidance, and resources for parents of young children with a hearing loss. Most resources are also available in Spanish on their website. The Clinic’s free services for families are supported entirely by grants and donations.​​ 

国家组织​​ 

  • 听力学博士学院​​  
    1024 Capital Center Drive, Suite 205 Frankfort, KY 40601
    电话：(866) 493-5544（免费）
    电子邮件： info@audiologist.org
    听力学医生学院为家长提供各种资源，帮助他们了解听力损失、了解听力学家的资质以及了解听力学家提供的服务。患者资源网页包含全国听力学家名单以及常见问题和解答列表。​​  
  • 亚历山大·格雷厄姆·贝尔聋人和听力障碍者协会​​  
    3417 Volta Place NW, Washington, DC 20007-2778
    电话/TTY/TDD：(202) 337-5220
    电子邮件： info@agbell.org
    亚历山大·格雷厄姆·贝尔协会在全球范围内致力于帮助失聪或听力障碍人士，为他们倾听、说话和成长提供支持。对于有听力损失的家庭，会员资格是免费的，包括资源库、经济支持以及来自认证治疗师和熟悉听力损失领域的父母的专业指导。​​  

The resources on this site were developed by Academy audiologists to give people an overview of hearing, hearing loss, hearing aids, common conditions, and more. The site features an Audiologist Directory to find an audiologists by location.​​ 

  • 美国听力研究基金会​​  
    4055 W. Peterson Ave., Suite 105 Chicago, IL 60646-6183
    电话：(773) 747-7280
    支持有关耳聋、听力损失和平衡障碍的原因、预防和治疗的医学研究和教育。让医生和公众了解听力研究和教育的最新进展。​​ 
  • 美国聋童协会​​ 
    邮局Box 23
    Woodbine, MD 21797
    电话/TTY/TDD：1-800-942-2732
    电子邮件： info@deafchildren.org
    美国聋童协会（ASDC）是由聋童父母创立和管理的最古老的全国性组织。该组织提供指导、宣传、协作网络等服务。他们提供许多免费资源，如美国手语海报，并帮助制定个性化教育计划。​​  

美国言语语言听力协会 (ASHA) 致力于确保所有患有言语、语言和听力障碍的人都能获得帮助他们有效沟通的服务。他们提供有关了解听力、平衡、语言以及如何利用健康保险服务的资源。​​ 

  • 起源​​  
    156-A Wind Chime Court, Raleigh, NC 27615 
    Phone/TTY: (919) 715-4092
    Fax: (919) 715-4093 
    Serves parents of children who are deaf or hard of hearing, works with professionals who help those children and their families, and offers information geared toward children’s questions about hearing loss. The website hosts many free resources for parents, professionals, and children, including a video series for parents learning how to communicate with their child who has a hearing loss.​​  
  • 更好的听力​​ 
    1301 K Street NW, Suite 300W, Washington DC, 20005
    电话：(202) 975-0905
    非营利性教育组织，实施有关听力损失和可用援助类型的国家公共信息计划。​​ 
  • 标题媒体节目：全国聋人协会​​ 
    1447 East Main Street, Spartanburg, SC 29307
    Phone: (800) 237-6213
    TTY/TDD: (800) 237-6819
    Fax: (800) 538-5636
    E-Mail: info@cfv.org
    Provides free loan services of open-captioned media for deaf and hard of hearing persons, teachers, parents, and others. Materials include videos (pre-school through college level-on a variety of topics (classical movies and special interest topics).​​ 
  • 听力与交流中心​​ 
    50 Broadway, 6th Floor, New York, NY 10004
    Although the centers only offer services at their physical locations, online they have several useful interactive tools to learn about hearing aids, their accessories, and hearing assistive technology. You can ask an expert about any of the topics listed on their site for free.​​   
  • 美国疾病控制与预防中心​​  
    Phone: (800) 232-4636
    Provides resources and information related to the detection and management of hearing impairment at an early age. The Hearing Loss in Children Resources page offers free, downloadable packets covering a range of topics from questions to ask doctors to decision guides for communication choices.  The Act Early page provides free materials to help track children’s development and what to do if concerned about a child’s development.​​  
  • 复活节封印​​ 
    141 W Jackson Blvd, Suite 1400A, Chicago, IL 60604
    电话：(800) 221-6827
    电子邮件： info@easter-seals.org
    提供早期干预服务、支持团体、设备贷款、信息和转介。他们在加利福尼亚州设有几家当地办事处，您可以使用他们的“查找您的复活节封印”工具以及搜索工具通过邮政编码查找免费或低成本服务（滚动到“联系我们”页面的底部以找到搜索工具）。​​  
  • 残障家庭资源中心​​  
    11 E. Adams St. Suite 615, Chicago, IL 60603
    Phone: (312) 939-3513
    TTY/TDD: (312) 939-3519
    Fax: (312) 939-7297
    E-Mail: info@frcd.org
    Provides parents with assistance, referrals, information, training, and support services to advocate for children with disabilities.​​  
  • 听力优先​​ 
    E-mail: info@hearingfirst.org
    Awareness, education, and community are the focus of Hearing First. Their completely free online resources include a library of actionable tips and guides for parents, webinars, podcasts, eBooks, educational courses, and family support communities.​​ 
  • 听力健康基金会​​ 
    Phone: (212) 257-6140
    TTY: (888) 435-6104
    Fax: (212) 599-0039
    E-Mail: info@hhf.org
    The mission of Hearing Health Foundation (HHF) is to prevent and cure hearing loss and tinnitus through groundbreaking research and to promote hearing health. HHF is the largest nonprofit funder of hearing and balance research in the U.S. and a leader in driving new innovations and treatments for people with hearing loss, tinnitus, and other hearing and balance disorders.​​ 
  • 美国听力损失协会 (HLAA)​​ 
    6116 Executive Blvd., Suite 320 Rockville, MD 20852
    Phone: (301) 657-2248
    E-Mail: inquiries@hearingloss.org
    Educational organization promoting the awareness and information about hearing loss, communication, assistive devices, and communication skills through publications, exhibits, and social support. They have communities in over 120 cities across the U.S. where peer support and strategies are shared in-person. Find the nearest community using their Find a Local Chapter feature.​​  
  • 全国聋人协会（NAD）​​ 
    8630 Fenton Street, Suite 202 Silver Spring, MD 20910 
    Videophone: 301-587-1788 (Purple/ZVRS) 301-328-1443 (Sorenson) 301-338-6380 (Convo)
    TTY: (301) 810-3182 
    Fax: (301) 587-1791
    E-Mail: nad.info@nad.org  
    The oldest and one of the largest consumer organizations advocating for equal access by people who are deaf or hard of hearing in the areas of employment, education, telecommunications, and rehabilitation. The association offers an extensive amount of educational resources for learning American Sign Language. They also have sample advocacy letters for navigating the school system, the legal system, visiting entertainment venues and more.​​  
  • 国家听力评估和管理中心（NCHAM）​​  
    Utah State University, 2880 Old Main Hill, Logan, UT 84322
    Phone: (435) 797-3584
    Hosts a searchable national directory to help families find pediatric audiology expertise for children and interactive resources for parents learning to support listening and spoken language development.​​  
  • 国家聋盲中心​​  
    141 Middle Neck Road Sands Point, NY 11050
    电话：1-(516) 366-0047
    电子邮件： support@nationaldb.org
    为聋盲儿童和青少年（从出生到 21 岁）提供的合作伙伴网络。该中心为家庭、服务提供者以及任何参与聋盲儿童生活的人提供各种资源的链接，包括情况说明书、网站、文章、视频。​​  
  • 全国提示言语协会​​  
    P.O. Box 2733 Fairfax, VA 22031-2733
    E-Mail: info@cuedspeech.org
    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them. The association hosts the Deaf Children’s Literacy Project which provides free resources like individualized mentorship, collaboration with state early intervention agencies, and downloadable cued speech toolkits.​​ 
  • 国家残疾和康复研究所​​  
    400 Maryland Avenue, SW, Washington, DC 20202-2572
    电话：(202) 205-8134
    TTY/TDD：(202) 205-4475
    传真：(202) 205-8515
    为残疾康复研究提供支持，并传播有关残疾人康复方法和技术的信息。​​ 
  • 美国父母对父母​​ 
    邮局Box 472 State College, PA 16804
    将全国范围内有特殊医疗保健需求儿童的家庭联系起来。提供信息、资源和推荐。鼓励参与家长计划和残疾人组织。他们为家庭提供会员资格，其中包括学习门户、家长手册、网络研讨会录音等。​​   
  • 零到三​​ 
    2445 M Street NW Suite 600 Washington, DC 20037
    电话：(202) 638-1144
    提供早期儿童培训和资源，以解决影响婴儿和幼儿的最关键问题。促进零至三岁儿童的社交、情感、认知和身体发育。​​  

其他资源​​ 

  • ASL 访问​​  
    拥有丰富的在线学习美国手语 (ASL) 资源以及可帮助浏览社交媒体和网络的 ASL 工具。他们还提供 ASL 艺术、历史和评论的集合。​​  
  • The Care Notebook (English), (Spanish)
    The Care Notebook is an outstanding organizer for families who have children with special needs. Families use the notebook to keep track of important information about their child’s health and care. The best part is the whole thing can be downloaded for free!​​ 
  • 耳聋早期干预中心​​ 
    早期耳聋干预中心 (CEID) 是加利福尼亚州的一家非营利组织，为居住在旧金山湾区的家庭提供服务。他们提供家访计划、聋人辅导、家庭活动等。​​ 
  • 洛朗克莱尔国家聋人教育中心​​  
    该中心在全国范围内开发和传播创新课程、教学技术和产品，同时为家长和专业人士提供信息、培训和技术援助，以满足从出生到 21 岁的聋哑和听力障碍学生的需求。​​  
  • LEAD-K 家庭服务​​ 
    专门为聋哑和听力障碍儿童成长的头五年内的家庭提供支持。他们的网站提供按学区查找早期启动计划、当地活动和研讨会以及免费下载教育资源的服务。​​ 
  • 听好了！
    收集了有聋哑或听力障碍儿童的家庭的证言和资源。​​  
  • My Baby’s Hearing​​  
    如果孩子被诊断出听力损失，则向父母提供有关听力筛查的信息并指导他们完成整个过程。他们有关于如何养育聋哑或听力障碍儿童、如何为他们做好入学准备以及如何支持孩子语言习得的指南。​​  
  • 北加州聋人和听力障碍人士服务​​ 
    这是一个范围广泛的机构，为北加州各个年龄段的聋人和听力障碍人士提供倡导、就业援助、教育机会和口译服务。​​ 
  • 看 中心​​  
    SEE（手语精确英语）中心是一个非营利组织，与聋哑儿童或听力障碍儿童的父母和教育工作者合作。该网站提供多种资源，包括现场和在线手语技能研讨会、在线视觉词典以及有关耳聋和交流的一般信息。​​  
  • 社交媒体和在线社区​​ 
    加州大学旧金山分校拥有一系列全国性的听力损失支持网站，包括助听器和人工耳蜗制造商特定社区以及一般帮助论坛。​​ 
  • 特殊需求项目​​  
    该网站展示了一个庞大的、可搜索的特殊需求娱乐活动、治疗师、学校等数据库。​​