家長資源
The Newborn Hearing Screening Program (NHSP) identified some helpful materials for the parents of children newly diagnosed with hearing loss. The information contained in the links below is meant to serve as a starting point and offer a baseline and/or foundation by which you can more successfully seek answers appropriate for you and your child’s unique situation. These resources may be helpful when researching services and options for your child. Certainly information regarding deafness is not limited to the materials provided here. We encourage you to contact professionals and organizations that you are comfortable with and who you trust to help you make the choices affecting your child’s future. An excellent place to start looking for answers to your questions is your local Hearing Coordination Center (HCC) or by calling the NHSP toll-free number at 1-877-388-5301.
有用的文章和可打印指南
- 約翰·特雷西中心
- 國家聽力評估中心 & 管理（NCHAM）
- 國家耳聾和其他溝通障礙研究所 (NIDCD)
- 探索聽力差異兒童的溝通機會
- 對耳聾/聽力障礙的孩子早期介入說「是」的 8 個理由
- 家庭服務推薦提早開始計劃
- 發展服務學系
- 一起開始：家庭早期干預指南： 英語 ， 西班牙 語，越南語
- 加州早期入門家庭資源中心查找工具
- Parent’s Rights: An Early Start Guide for Families
- 瞭解什麼是 IFSP
- 如何獲得助聽器保障資格
- 聽力障礙
- 疾病控制和預防中心 (CDC)
- 溝通選擇決策指南
- 為您的孩子制定計劃
- 早期干預：耳聾和聽障嬰兒家庭的溝通與語言
- Questions You May Want to Ask Your Child’s Medical Professional
- Questions You May Want to Ask Your Child’s Genetics Team
- Questions You May Want to Ask Your Child’s Early Interventionists
- Questions You May Want to Ask Your Child’s ENT Doctor
- Questions You May Want to Ask Your Child’s Audiologist
- Parents’ Guide to Genetics and Hearing Loss
- 聽力損失的家長指南：培養溝通技巧
- 助聽器技術
- 11 個兒童手語活動
- 有趣的美國手語遊戲可幫助您學習 ASL
- 與寶寶交流：0-12 個月
國家資源
- Children’s Medical Services
California Department of Health Care Services
Plays a key role in overseeing and supporting programs that provide or fund preventative, diagnostic, and treatment services including well-child assessments, immunizations, specialized health services, therapy, and rehabilitation services. The Children’s Medical Services (CMS) administers the following programs:- California Children’s Services (CCS)
- 聽力保護計劃（HCP）
- 新生兒聽力篩查計劃（NHSP）
- 加州發展服務部，早期啟動計劃
P.O. Box 944202, Sacramento, CA 94244-2020
800-515-BABY (800-515-2229)
E-Mail: earlystart@dds.ca.gov
The Early Start program publishes a directory of family resource centers, regional centers, local education agencies, and other public agencies who are knowledgeable about early intervention and disabilities, and other related resources for infants and toddlers with special needs and their families.
- 加州教育部，聾人教育
E-mail: nhlibokamann@cde.ca.gov
Provides resources to parents including but not limited to: milestone guides, assessment tools, sign language videos, telecommunication services and equipment access, as well as legal explanations of the resources young children who are deaf or hard of hearing have a right to access in school.
- 加州教育部特殊教育部
電話：(916) 445-46 13
電子郵件：specedinfoshare@cde.ca.gov
負責為具有特殊教育需要的學生開發和協調提供課程。這包括為視覺、聽力或骨科障礙或其組合的嬰兒和幼兒提供的非醫療早期干預服務。服務通過特殊教育地方規劃區和地方教育機構協調和提供在本地。
- 加州教育部：特殊教育地方計劃區
加利福尼亞州薩克拉門托 270 號 L 街 515 號 L 街 95814
電 話：(916) 445-4613
電子郵件：specedinfoshare@cde.ca.gov
早期干預服務（非醫療）由稱為特殊教育地方計劃區（SELPA）的組織管理和協調。早期干預服務由當地教育機構（LEA）提供，例如學區和縣教育辦事處。SELPA 和 LEA 為不符合區域中心服務資格且具有視覺、聽力或骨科障礙或兩者組合的嬰兒和幼兒服務。
- 加州社會服務部（CDSS），聾人接入計劃
Phone: (916) 653-8320
Videophone: (916) 330-3242
E-Mail: Deaf.Access@dss.ca.gov
Hosts directories for Deaf Access Programs and Sign Language Interpreter services. The Deaf Access Programs in California provide communication services, advocacy services, job placement, referrals, counseling, independent living skills instruction, and community education.
- 加利福尼亞聾人學校，弗里蒙特
39350 Gallaudet Drive, Fremont, CA 94538
Phone: (510) 248-4204
Videophone: (510) 248-4204
Fax: (510) 794-2409
Educational resources for families with deaf children and the community in Northern California. The school offers free, weekly online American Sign Language classes for families as well as tutoring.
- 加利福尼亞聾人學校，河濱
2044 Horace Street, Riverside, CA 92506
Phone: (951) 824-8114
E-Mail: info@csdr-cde.ca.gov
Offers comprehensive educational and extra-curricular programs that prepare students to achieve their full academic, social, and career potential. The school serves deaf and hard-of-hearing students between the ages of 3 and 21 who reside in Southern California.
- 手與聲音
Hands and Voices 是家長驅動的非營利組織，致力於為有耳聾或聽力障礙兒童的家庭提供公正支持。他們為家長和專業人士提供有關聾和聽力障礙問題的支持活動和信息，這些活動可能包括外展活動、教育研討會、倡導、遊戲工作、家長與家長聯繫以及電子報。
- 兒童助聽器核保專案
California Department of Health Care Services
Phone (Multilingual, TTY/TTD): (833) 956-2878
E-Mail: HACCP@maximus.com
The Hearing Aid Coverage for Children Program (HACCP) offers hearing aid coverage to eligible children and youth, ages 0-20, including supplemental coverage for applicants whose other health coverage has a limit of $1,500 or less for hearing aids. The webpage offers information on covered benefits, eligibility, and more.
- 約翰·特雷西診所
2160 West Adams Blvd., Los Angeles CA, 90018
Phone: (213) 748-5481
TTY: (213) 747-2924
Fax: (213) 749-1651
E-Mail: web@jtc.org
John Tracy Clinic provides free education, guidance, and resources for parents of young children with a hearing loss. Most resources are also available in Spanish on their website. The Clinic’s free services for families are supported entirely by grants and donations.
國家組織
- 聽力學博士學院
首都中心大道 1024 號，肯塔基州法蘭克福 205
號套房 40601
電 話：(866) 493-5544（免費電話）電子郵件：info@audiologist.org
聽力學博士學院為父母提供各種資源，以了解聽力損失，了解聽力學家的資格以及了解聽力學家提供的服務。患者資源網頁維護全國的聽力學家列表，以及常見問題和答案的列表。
- 亞歷山大·格雷厄姆·貝爾耳聾和聽障人協會
華盛頓特區北南威爾塔廣場 3417 號 20007-2778
電話/電話/電子郵件：(202) 337-5220
電子郵件：info@agbell.org
亞歷山大·格雷厄姆·貝爾協會在全球範圍內致力為失聰或聽力障礙的人提供支持，為他們提供傾聽、說話和發展的支持。他們的會員資格對於有聽力損失的家庭免費，並包括資源庫、財務支持以及來自經過導航聽力損失世界的認證治療師和父母的專業指導。
The resources on this site were developed by Academy audiologists to give people an overview of hearing, hearing loss, hearing aids, common conditions, and more. The site features an Audiologist Directory to find an audiologists by location.
- 美國聽力研究基金會
4055 西彼得森大道，伊利諾伊州芝加哥 105 套房 60646-6183 電
話：(773) 747-7280
支持有關耳聾，聽力損失和平衡障礙的原因，預防和治療的醫學研究和教育。讓醫生和公眾了解聽力研究和教育的最新發展。
- 美國失聰兒童協會
郵政局郵箱 23
伍德賓，馬里蘭州 21797
電話/電話/電子郵件：1-800-942- 2732
電子郵件：info@deafchildren.org
美國失聰兒童協會（ASDC）是由失聰兒童的父母創立和管理的最古老的國家組織。該組織提供指導、倡導、協作網絡等。他們提供許多免費資源，例如美國手語海報，以及導航個性化教育計劃的幫助。
美國語言聽力協會（ASHA）致力於確保所有患有言語，語言和聽力障礙的人都能獲得幫助他們有效溝通的服務。他們提供了有關了解聽力，平衡，語言以及如何導航服務的健康保險的資源。
- 開始
156-A Wind Chime Court, Raleigh, NC 27615
Phone/TTY: (919) 715-4092
Fax: (919) 715-4093
Serves parents of children who are deaf or hard of hearing, works with professionals who help those children and their families, and offers information geared toward children’s questions about hearing loss. The website hosts many free resources for parents, professionals, and children, including a video series for parents learning how to communicate with their child who has a hearing loss.
- 更好的聽力
1301 K 街 NW，300W 套房，華盛頓特區，20005 電
話：(202) 975-0905 非營利教育組織，實施有關聽力
損失和可用類型的幫助的全國公共信息計劃。
- 標題媒體計劃：全國聾人協會
1447 East Main Street, Spartanburg, SC 29307
Phone: (800) 237-6213
TTY/TDD: (800) 237-6819
Fax: (800) 538-5636
E-Mail: info@cfv.org
Provides free loan services of open-captioned media for deaf and hard of hearing persons, teachers, parents, and others. Materials include videos (pre-school through college level-on a variety of topics (classical movies and special interest topics).
- 聽力與溝通中心
50 Broadway, 6th Floor, New York, NY 10004
Although the centers only offer services at their physical locations, online they have several useful interactive tools to learn about hearing aids, their accessories, and hearing assistive technology. You can ask an expert about any of the topics listed on their site for free.
- 疾病控制及預防中心
Phone: (800) 232-4636
Provides resources and information related to the detection and management of hearing impairment at an early age. The Hearing Loss in Children Resources page offers free, downloadable packets covering a range of topics from questions to ask doctors to decision guides for communication choices. The Act Early page provides free materials to help track children’s development and what to do if concerned about a child’s development.
- 復活節海豹
伊利諾伊州芝加哥 141W 傑克遜大道 1400A
套房 60604
電 話：(800) 22 1-6827 電子郵件：info@easter-seals.org
提供早期干預服務，支持小組，設備貸款，信息和轉介。他們在加利福尼亞州提供了幾個當地辦事處，您可以使用他們的「尋找您的復活節印章」工具以及搜索工具來通過郵政編碼查找免費或低成本服務（滾動到「聯繫我們」頁面的底部以查找搜索工具）。
- 殘疾家庭資源中心
11 E. Adams St. Suite 615, Chicago, IL 60603
Phone: (312) 939-3513
TTY/TDD: (312) 939-3519
Fax: (312) 939-7297
E-Mail: info@frcd.org
Provides parents with assistance, referrals, information, training, and support services to advocate for children with disabilities.
- 聽證第一
E-mail: info@hearingfirst.org
Awareness, education, and community are the focus of Hearing First. Their completely free online resources include a library of actionable tips and guides for parents, webinars, podcasts, eBooks, educational courses, and family support communities.
- 聽力健康基金會
Phone: (212) 257-6140
TTY: (888) 435-6104
Fax: (212) 599-0039
E-Mail: info@hhf.org
The mission of Hearing Health Foundation (HHF) is to prevent and cure hearing loss and tinnitus through groundbreaking research and to promote hearing health. HHF is the largest nonprofit funder of hearing and balance research in the U.S. and a leader in driving new innovations and treatments for people with hearing loss, tinnitus, and other hearing and balance disorders.
- 美國聽力損失協會（HLAA）
6116 Executive Blvd., Suite 320 Rockville, MD 20852
Phone: (301) 657-2248
E-Mail: inquiries@hearingloss.org
Educational organization promoting the awareness and information about hearing loss, communication, assistive devices, and communication skills through publications, exhibits, and social support. They have communities in over 120 cities across the U.S. where peer support and strategies are shared in-person. Find the nearest community using their Find a Local Chapter feature.
- 海倫凱勒耳盲青少年和成人中心
111 Middle Neck Road, Sands Point, NY 11050
Phone: (516) 944-8900 x 1299
E-Mail: hkncinfo@hknc.org
Provides services such as vocational rehabilitation, equipment distribution, assistive technology training, advocacy and more.
- 全國聾人協會（NAD）
8630 Fenton Street, Suite 202 Silver Spring, MD 20910
Videophone: 301-587-1788 (Purple/ZVRS) 301-328-1443 (Sorenson) 301-338-6380 (Convo)
TTY: (301) 810-3182
Fax: (301) 587-1791
E-Mail: nad.info@nad.org
The oldest and one of the largest consumer organizations advocating for equal access by people who are deaf or hard of hearing in the areas of employment, education, telecommunications, and rehabilitation. The association offers an extensive amount of educational resources for learning American Sign Language. They also have sample advocacy letters for navigating the school system, the legal system, visiting entertainment venues and more.
- 國家聽力評估和管理中心（NCHAM）
Utah State University, 2880 Old Main Hill, Logan, UT 84322
Phone: (435) 797-3584
Hosts a searchable national directory to help families find pediatric audiology expertise for children and interactive resources for parents learning to support listening and spoken language development.
- 國家耳盲中心
紐約州金沙角中頸路 141
號電 話：1-(516) 366- 0047 電子郵件：support@nationaldb.org
為失聰兒童和青少年（從出生至 21 歲）的合作夥伴網絡。該中心為家庭，服務提供者和任何其他涉及耳聾兒童生活的任何其他人提供了通往各種資源的鏈接（資料表，網站，文章，視頻）。
- 全國提示語言協會
P.O. Box 2733 Fairfax, VA 22031-2733
E-Mail: info@cuedspeech.org
Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them. The association hosts the Deaf Children’s Literacy Project which provides free resources like individualized mentorship, collaboration with state early intervention agencies, and downloadable cued speech toolkits.
- 國家衛生研究所
國家耳聾和其他溝通障礙研究所 (NIDCD)
電話：(800) 24
至一百四十四十四、台灣時代碼：(800) 241-10 55
電子郵件：nidcdinfo@nidcd.nih.gov
提供信息和傳播材料，以教育公眾和衛生專業人員有關人類溝通的研究領域。該研究所有關新生兒聽力篩查、下一步驟以及父母要遵循聽力健康的時間表的信息。它們還託管一個組織目錄，提供有關聽力，語音和語言失調過程的信息。
- 國家殘疾和康復研究所
華盛頓特區西南馬里蘭大道 400 號 20202-2572 電
話：(202) 205-8134
TTY/TDD：(202) 205-4475
傳真：(202) 205-8515 為殘疾復康研究
提供支持，並傳播有關殘疾人士康復方法和技術的信息。
- 家長至父母美國
郵政局盒 472 賓夕法尼亞州立學院 16804
連結了全國兒童有特殊醫療護理需求的家庭。提供資訊、資源和轉介。鼓勵參與家長計劃和殘疾組織。他們為家庭提供會員資格，其中包括學習門戶，家長手冊，網絡研討會錄像等。
- 零到三
2445 M 街 NW 套房 600 華盛頓特區 20037 電
話：(202) 638-1144 提供幼兒培訓和資源，
以解決影響嬰兒和幼兒最重要的問題。促進零至三歲兒童的社交，情緒，認知和身體發展。
其他資源
- ASL 訪問權限
提供豐富的資源清單，用於在線學習美國手語（ASL）以及可以幫助瀏覽社交媒體和網絡的 ASL 工具。他們還提供了 ASL 藝術，歷史和評論的集合。 - The Care Notebook (English), (Spanish)
The Care Notebook is an outstanding organizer for families who have children with special needs. Families use the notebook to keep track of important information about their child’s health and care. The best part is the whole thing can be downloaded for free! - 耳聾早期干預中心
耳聾早期干預中心（CEID）是一個加利福尼亞州的非營利組織，為居住在舊金山灣區的家庭提供服務。他們提供家庭訪問計劃，聾人教練，家庭活動等。 - 勞倫特克萊克國家聾人教育中心
該中心在全國開發和傳播創新的課程，教學技術和產品，同時為家長和專業人士提供信息，培訓和技術幫助，以滿足從出生到 21 歲的聾人和聽力障礙學生的需求。 - 利迪 K 家庭服務
特別為耳聾和聽力障礙兒童發展的前 5 年提供支持的家庭。他們的網站提供服務，可以按學區查找早期開始計劃，當地活動和工作坊，以及免費下載的教育資源。 - 聽起來！
收集來自有耳聾或聽力障礙兒童的家庭的見證和資源。 - My Baby’s Hearing
為家長提供有關聽力篩查的信息，如果他們的孩子被診斷出了聽力損失，引導他們完成該過程。他們有關如何養育耳聾或聽力障礙的孩子，如何為他們準備上學，以及如何支持孩子的語言學習。 - NorCal 聽障人士服務
這是一個廣泛的機構，為北加利福尼亞州各個年齡段的聾人和聽力障礙者提供倡導、就業援助、接受教育和口譯服務。 - 西洋 中心
SEE（簽署精確英語）中心是一個非營利組織，與耳聾或聽力障礙兒童的父母和教育工作者合作。該網站提供了許多資源，包括面對面和在線的手牌技能工作坊，一個在線視覺詞典，以及有關耳聾和溝通的一般信息。 - 社交媒體和線上社群
加州大學舊金山大學舉辦了一系列國家的聽力損失支持網站，包括助聽器和人工耳蝸植入生產商專用社區到一般幫助論壇。 - 特殊需求項目
該網站展示了一個龐大的可搜索的特殊需要康樂活動，治療師，學校等數據庫。