Skip to Main Content

Parent Resources

The following list of websites was compiled for parents of children newly diagnosed with hearing loss. In an effort to help direct parents to useful resources, these websites have been previewed and summarized. Information regarding hearing loss and deafness is not limited to the websites listed here; this is simply a starting point for parents to begin researching services and options.

State Resources

  • Hearing Aid Coverage for Children Program
    California Department of Health Care Services
    Phone (Multilingual, TTY/TTD): (833) 956-2878
    E-mail: HACCP@maximus.com
    The Hearing Aid Coverage for Children Program (HACCP) offers hearing aid coverage to eligible children and youth, ages 0-20, including supplemental coverage for applicants whose other health coverage has a limit of $1,500 or less for hearing aids. The webpage offers information on covered benefits, eligibility, and more. 

  • California Department of Developmental Services, Early Start Program 
    P.O. Box 944202, Sacramento, CA  94244-2020
    800-515-BABY (800-515-2229)
    E-mail: earlystart@dds.ca.gov
    The Early Start program publishes a directory of family resource centers, regional centers, local education agencies, and other public agencies who are knowledgeable about early intervention and disabilities, and other related resources for infants and toddlers with special needs and their families.
  • California Department of Education: Special Education Local Plan Areas 
    515 L Street, Room 270, Sacramento, CA  95814
    Phone: (916) 445-4613
    E-mail: specedinfoshare@cde.ca.gov
    Early intervention services (non-medical) are administered and coordinated by organizations known as special education local plan areas (SELPA).  Early intervention services are provided by local education agencies (LEA) such as school districts and county offices of education.  SELPAs and LEAs serve infants and toddlers who are not eligible for Regional Center services and who have a visual, hearing or orthopedic impairment or a combination of these.
  • California Department of Education, Deaf Education
    E-mail: nhlibokamann@cde.ca.gov
    Provides resources to parents including but not limited to: milestone guides, assessment tools, sign language videos, telecommunication services and equipment access, as well as legal explanations of the resources young children who are deaf or hard of hearing have a right to access in school. 

  • California Department of Education, Special Education Division
    Phone: (916) 445-4613
    E-mail: specedinfoshare@cde.ca.gov
    Is responsible for developing and coordinating the provision of programs to students with special educations needs. This includes non-medical early intervention services for infants and toddlers who have a visual, hearing, or orthopedic impairment or a combination of these. Services are coordinated and provided locally through Special Education Local Planning Areas and Local Education Agencies.

  • California Department of Social Services (CDSS), Deaf Access Program
    Phone: (916) 653-8320
    Videophone: (916) 330-3242
    E-mail: Deaf.Access@dss.ca.gov
    Hosts directories for Deaf Access Programs and Sign Language Interpreter services. The Deaf Access Programs in California provide communication services, advocacy services, job placement, referrals, counseling, independent living skills instruction, and community education. 

  • California School for the Deaf, Fremont
    39350 Gallaudet Drive, Fremont, CA  94538
    Phone: (510) 248-4204 
    Videophone: (510) 248-4204 
    Fax:  (510) 794-2409
    Educational resources for families with deaf children and the community in Northern California. The school offers free, weekly online American Sign Language classes for families as well as tutoring. 

  • California School for the Deaf, Riverside
    2044 Horace Street, Riverside, CA 92506
    Phone: (951) 824-8114 
    E-mail: info@csdr-cde.ca.gov
    Offers comprehensive educational and extra-curricular programs that prepare students to achieve their full academic, social, and career potential. The school serves deaf and hard-of-hearing students between the ages of 3 and 21 who reside in Southern California.   

  • John Tracy Clinic 
    2160 West Adams Blvd., Los Angeles CA, 90018
    Phone: (213) 748-5481 
    TTY: (213) 747-2924
    Fax: (213) 749-1651
    Email: web@jtc.org
    John Tracy Clinic provides free education, guidance, and resources for parents of young children with a hearing loss. Most resources are also available in Spanish on their website. The Clinic’s free services for families are supported entirely by grants and donations.

National Organizations

  • Academy of Doctors of Audiology 
    1020 Monarch Street, Suite 300B, Lexington, KY 40513
    Phone: (866) 493-5544 (Toll Free)
    Fax: (859) 977-7441
    Contact Webpage: https://www.audiologist.org/
    Academy of Doctors of Audiology, formerly the Academy of Dispensing Audiologists - Supports professional dispensing of hearing aids, research, and professional development in aural rehabilitation. Maintains a list of audiologists nationwide as well as a list of frequently asked question and answer.
  • American Hearing Research Foundation 
    55 East Washington Street, Suite 2022, Chicago, IL 60602
    Phone: (312) 726-9670
    Fax: (312) 726-9695
    Supports medical research and education in the causes, prevention, and cures of deafness, hearing losses, and balance disorders. Keeps physicians and the public informed on the latest developments in hearing research and education.
  • American Society for Deaf Children
    P.O. Box 23
    Woodbine, MD  21797
    Phone/TTY/TDD: 1-800-942-2732 (ASDC)
    Email: info@deafchildren.org
    A nonprofit parent-helping parent organization promoting a positive attitude toward sign language and deaf culture. Provides information, encouragement, and support to families with deaf and hard of hearing children.
  • BEGINNINGS 
    P.O. Box 17646, Raleigh, NC 27619
    Phone/TTY: (919) 850-2746
    Fax: (919) 571-4846
    This is a non-profit organization dedicated to meeting the needs of families with children who are deaf or hard of hearing. The website hosts a broad range of services and resources. Produces materials and videos oriented towards helping families make choices about communication methods.
  • Better Hearing Institute Helpline 
    515 King Street, Suite 420, Alexandria, VA  22314
    Phone: (800) 327-9355, (888) HEAR-HELP or (703) 684-3391
    TTY/TDD: (703) 684-3391
    Fax: (703) 684-6048
    E-Mail: mail@betterhearing.org
    Nonprofit educational organization that implements national public information programs on hearing loss and the available types of assistance.
  • National Center on Deafness
    California State University, Northridge
    18111 Nordhoff Street, Northridge, CA  91330-8267
    Phone: (818) 677-2145
    TTY/TDD: (Library) (818) 677-2665, (Main Number) (818) 677-2611 
    Fax: (818) 677-4899
    Provides information and referrals on a wide variety of topics related to deafness. 
  • Captioned Media Program: National Association of the Deaf
    1447 East Main Street, Spartanburg, SC 29307
    Phone: (800) 237-6213
    TTY/TDD: (800) 237-6819
    Fax: (800) 538-5636
    E-Mail: info@cfv.org
    Provides free loan services of open-captioned media for deaf and hard of hearing persons, teachers, parents, and others. Materials include videos (pre-school through college level-on a variety of topics (classical movies and special interest topics).
  • Centers for Disease Control and Prevention 
    Early Hearing Detection and Intervention Program
    4770 Buford Highway NE, MS/F-15, Atlanta, GA  30341-3724
    Phone: (770) 488-7360
    Fax: (770) 488-7361
    E-Mail: ehdi@cdc.gov
    Provides resources and information related to the detection and management of hearing impairment at an early age. Families and professionals are welcome to participate in bi-monthly teleconferences.
  • Central Institute for the Deaf 
    818 South Euclid Avenue, St. Louis, MO  63110-1549
    Phone: (314) 977-0000 or (877) 444-4574
    TTY/TDD: (314) 977-0001
    Fax: (314) 977-0025
    A network of resources addressing the progressive treatment of adult and childhood deafness.
  • Council for Exceptional Children 
    Ballston Plaza Two
    1110 North Glebe Road, Suite 300, Arlington, VA  22201-5704
    Phone: (888) 232-7773
    TTY/TDD: (866) 915-5000
    Fax: (703) 264-9494
    Toll Free: (800) 224-6830
    Professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and the gifted.
  • Cued Speech Association 
    Nazareth College
    4245 East Avenue, Rochester, NY 14618
    Voice/TTY: (716) 586-2525
    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them.
  • DB-Link 
    Teaching Research
    345 N. Monmouth Ave, Monmouth, OR  97361
    Phone: (800) 438-9376 
    TTY: (800) 854-7013
    Fax: (503) 838-8150
    Email:  dblink@tr.wou.edu
    A federally funded information and referral service that identifies, coordinates, and disseminates free information related to deaf and blind children in the United States. DB-LINK is a collaborative effort between: American Association of the Deaf-Blind, Helen Keller National Center, Perkins School for the Blind and Teaching Research.
  • Easter Seals
    230 West Monroe Street, Suite 1800, Chicago, IL  60606
    Phone: (800) 221-6827 or (312) 726-6200
    TTY/TDD: (312) 726-4258
    Fax: (312) 726-1494
    E-Mail: info@easter-seals.org
    Provides early intervention services, support groups, equipment loans, information, and referrals. Contact for local affiliates.
  • International Hearing Society 
    16880 Middlebelt Road, Suite 4, Livonia, MI  48154
    Phone: (734) 522-7200 or Hearing Aid
    Helpline: (800) 521-5247
    Fax: (734) 522-0200
    A professional association of Hearing Instrument Specialists who test hearing and select, fit, and dispense hearing instruments. The Society conducts programs of competence qualifications, education and training, and promotes
    specialty-level accreditation. The Hearing Aid Helpline provides consumer information and referrals.
  • Joint Committee on Infant Hearing Screening
    Indiana University School of Medicine
    James Whitcomb Riley Hospital for Children
    702 Barnhill Drive, Suite 0860, Indianapolis, IN  46202-5230
    Phone: (317) 274-8868
    Fax: (317) 274-6680
    Addresses issues important to the early identification, evaluation, and follow-up care of infants and young children with hearing loss.
  • League for the Hard of Hearing
    50 Broadway, 6th Floor, New York, NY 10004
    Phone: (917) 305-7700
    Phone: (917) 305-7700
    TTY: (917) 305-7999
    Fax: (917) 305-7888
    Email: info@lhh.org
    Offers comprehensive hearing rehabilitation and programs for infants, children, and their families regardless of mode of communication. Promotes hearing conservation and provides public education about hearing.

  • National Association of the Deaf (NAD)
    814 Thayer Avenue, Silver Springs, MD 20910-4500
    Phone: (301) 587-1788
    TTY: (301) 587-1789
    Fax: (301) 587-1791
    E-Mail: NADinfo@nad.org
    The oldest and one of the largest consumer organizations advocating for equal access by people who are deaf or hard of hearing in the areas of employment, education, telecommunications, and rehabilitation. Also, maintains the NAD Publications Department, deaf awareness programs, a legal defense fund, a public information center, youth programs, and certification programs for interpreters and for sign language instructors.
  • National Campaign for Hearing Health (Not DHCS)
    575 Fifth Avenue, 11th Floor, New York, NY 10017
    Phone/TTY/TDD: (800) 535-3323 or (212) 599-0027
    Fax: (212) 599-0039
    E-Mail: drf@drf.org
    Provides public outreach, professional education, and government relations activities to ensure that all Americans, especially children, can benefit from research breakthroughs and enjoy lifelong hearing.
  • National Center for Hearing Assessment and Management (NCHAM) 
    Utah State University, 2880 Old Main Hill, Logan, UT 84322
    Phone: (435) 797-1121
    Fax: (435) 797-1448
    Develops training materials for hospital universal screening programs, information dissemination, refinement of screening techniques and technology, and data management.
  • National Cued Speech Association 
    P.O. Box 2733 Fairfax, VA 22031-2733
    E-Mail: info@cuedspeech.org
    Provides advocacy and support regarding use of cued speech for deaf and hard of hearing people of all ages, their families and friends, and professionals who work with them. The association hosts the Deaf Children’s Literacy Project which provides free resources like individualized mentorship, collaboration with state early intervention agencies, and downloadable cued speech toolkits.
  • National Institute on Disability and Rehabilitation Research 
    400 Maryland Avenue, SW, Washington, DC 20202-2572
    Phone: (202) 205-8134
    TTY/TDD: (202) 205-4475
    Fax: (202) 205-8515
    Provides support for disability rehabilitation research and disseminates information about rehabilitation methods and technology for individuals with disabilities.
  • National Parent Network on Disabilities 
    1130 17th Street NW, Suite 400, Washington, DC 20036
    Phone/TTY/TDD: (202) 463-2299
    Fax: (202)463-9403
    Advocates and supports the development and implementation of legislation that improves the lives and protects the rights of children, youth, and adults with disabilities. Provides information, support, and referrals.
  • National Parent-to-Parent Support and Information System, Inc.
    P.O. Box 907, Blue Ridge, GA 30513
    Phone: (800) 651-1151 or (706) 374-3822
    Fax: (706) 374-3826
    E-Mail: nppsis@ellijay.com
    Links families nationally whose children have special health care needs. Provides information, resource, and referrals. Encourages participation in parent programs and disability organizations. Networks parents with local Parent-to-Parent organizations.
  • Oberkotter Foundation 
    Phone: (877) ORALDEAF or (877) 672-5332
    Provides free videos, and other educational materials and information regarding Oral-Deaf education for children.
  • Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
    1700 North Moore Street, Suite 1540, Arlington, VA  22209-1903
    Phone: (703) 524-6686
    TTY/TDD: (703) 524-6639
    Fax: (703) 524-6630
    E-Mail: info@resna.org
    Promotes research, development, education, and dissemination of information. Programs include an annual conference, RESNA publications, publication of the journal Assistive Technology, professional development opportunities, and participation in professional specialty groups.
  • Hearing Loss Association of America (HLAA)
    7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814
    Phone: (301) 657-2248
    TTY/TDD: (301) 657-2249
    Fax: (301) 913-9413
    Educational organization promoting the awareness and information about hearing loss, communication, assistive devices, and communication skills through publications, exhibits, and presentations.

Web Resources

  • American Society for Deaf Children 
    This organization provides support, encouragement, and information to families raising children who are deaf or hard of hearing. Its website provides highlights of the latest legal developments concerning the ADA (Americans with Disabilities Act), educational issues, etc.
  • ASL Access 
    This organization provides ASL (American Sign Language) video resources for public libraries. It also provides video reviews and names of places to purchase ASL videos. Check out this website to learn more about the videos available.
  • BEGINNINGS
    This is a non-profit organization dedicated to meeting the needs of families with children who are deaf or hard of hearing. The website hosts a broad range of services and resources. 
  • The Care Notebook (English), (Spanish)
    The Care Notebook is an outstanding organizer for families who have children with special needs. Families use the notebook to keep track of important information about their child’s health and care. The best part is the whole thing can be downloaded for free!
  • Center For Early Intervention on Deafness
    Center for Early Intervention on Deafness (CEID) is a California nonprofit organization serving families who reside throughout the San Francisco Bay Area.
  • Hands and Voices 
    Hands and Voices is a parent driven, non-profit organization dedicated to providing unbiased support to families with children who are deaf or hard of hearing. We provide support activities and information concerning deaf and hard of hearing issues to parents and professionals that may include outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking, and a newsletter. We strive to connect families with resources and information to make informed decisions around the issues of deafness or hearing loss.
  • Laurent Clerc National Deaf Education Center 
    This site lists helpful books and resources for parents of children who are deaf or hard of hearing. 
  • The Listen-Up Web 
    This is a very large website dedicated to gathering information and developing products geared to the special needs of deaf/hard of hearing children and their families. 
  • My Baby's Hearing 
    This is a website developed by Boys Town National Research Hospital with support from National Institute on Deafness and Other Communications Disorders. It provides parents with information regarding hearing screening and walks them through the process if their child has a diagnosed hearing loss. 
  • National Institute on Deafness and Other Communication Disorders
    This is an excellent site with valuable information for parents. They include an unbiased look at communication options for children who are deaf or hard of hearing.
  • NorCal Center on Deafness 
    This is a wide-ranging agency that provides services for the deaf and hard of hearing of all ages across Northern California.
  • S.E.E. Center 
    The SEE (Signing Exact English) Center for the Advancement of Deaf Children was established in 1984 as a nonprofit organization to work with parents and educators of hearing impaired children. Peruse this website for more information. 
  • Social Media and Online Communities
    The University of California San Francisco hosts a collection of national hearing loss support websites ranging from manufacterer-specific communities to general help forums.
  • Sound and Fury 
  • This website provides a thorough list of resources on the topics of cochlear implants, deaf children, sign language, books, and more. Definitely check it out! 
  • Special Needs Project 
    This website showcases a one-of-a-kind bookstore specializing in disabilities. Special Needs Project has thousands of titles in stock, including many of those "hard to get" books.
Last modified date: 5/6/2025 3:03 PM